JOHNSON CITY, TN (WJHL) – The Boone family of Johnson City is home for the holidays following months of treatment in Memphis for 10-year-old Ben’s cancerous brain tumor.
Doctors found a marble sized tumor in the center of Ben’s brain after he was complaining of headaches and double vision; the tumor has since been removed.
When doctors at St. Jude’s hospital in Memphis told Ben he and his family could go home for the holidays, he was ecstatic.
“It just brought joy to my face, joy to my entire body,” Ben Boone said.
His father, Johnathan Boone said having the family reunited for the holidays was his Christmas present.
The cancerous tumor is gone and Ben has an S-shaped scar to prove it. The Boone family is in good spirits and they say things are looking up and the prognosis is good.
Ben’s gone through nearly 30 rounds of radiation and is preparing for five months of chemotherapy, but a good attitude and some strength can go a long way.
“I still have a little fuzz, mom and dad say I’m like a little chick,” Ben Boone said.
His mom Deanna Boone said her son is a tough cookie and nurses and doctors are impressed with his strength.
“They’d come in and ask him his pain level and he’d be like, zero, and they’d be like are you kidding me!” Deanna Boone said.
This experience has put life in perspective for the Boone family.
“It changes your hopes and your dreams and your expectations of life,” Johnathan Boone said.
When his treatment ends, volunteers from the non-profit organization, Special Spaces Tri-Cities hope to build Ben the bedroom of his dreams.
“We are just so excited to be able to be a part of their journey and hopefully help Ben in his healing process,” Director of Special Spaces Tri-Cities, Charity Thomas said.
News Channel 11’s Justin Soto asked Ben what keeps him going every day.
“It’s just coming from all the support I’ve been getting, all the letters, all of my friends telling me that I’m doing a very good job,” Ben Boone said.
Ben even named his tumor something clever.
“We decided to name it fear because as soon as they took it out, I’ll be fearless,” Ben Boone said.
Ben said he might want to be a journalist or public speaker one day. He’s looking forward to spending time with his family, friends and his dogs Sweetie and Irish.
The Boone family heads back to Memphis mid-January to start the five months of chemotherapy.
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