WEST SENECA, N.Y. (WIVB) — The score was the last thing on anyone’s mind when teams from West Seneca East and Frontier schools shook hands last month.
“Sports is a great vehicle to come together, become teammates,” says Jim Steffen, head coach of the Frontier Modified Football Program.
On October 27th, Frontier took on West Seneca East’s modified football team — the Trojans. One of WSE’s players, Nick Rammuno, 13, had a special moment that night.
Rammuno has a rare disease called Kabuki. The disease affects just one in every 35,000 people. Nick was diagnosed with the disease at the young age of 18 months.
This summer, right before the season started, complications from the disease arose and Nick began to lose hearing in his right ear. He was then diagnosed with Nash, a fatty liver disease.
After the liver biopsy, Nick could not have physical contact for a few weeks. If he was hit, Nick would be at risk of his liver bleeding out.
Despite this, Nick was determined to not let this disease hold him back from playing his favorite sport.
“I got involved, liking it because of my brother and stuff like that. They’re playing modified football,” says Rammuno.
All season long, Nick stood on the sidelines cheering on his favorite team and waiting for his time to take the turf.
During West Seneca East’s final game of the season against Frontier, Nick had his moment.
With time ticking in the fourth quarter, the coaches on both teams initiated a plan to give Nick time to play.
One of his coaches told him it was his time to get the ball, leading to a touchdown by Nick Rammuno.
In a special moment, Nick and his mother cried, neither of them being able to speak, according to his mother.
Nick’s mother Louise says, “That’s all I ever wanted to see was him be happy.”
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